On December 22^nd 1994 The Dr. Bernard Steinberger National Fragile X Syndrome Foundation was founded by Sandy Steinberger.

The Dr. Bernard Steinberger National Fragile X Syndrome Foundation is a qualified non-profit organization as defined pursuant to the Internal Revenue Code section 501(c) (3).

Dr. Steinberger had four sons and all were born with Fragile X Syndrome.

Fragile X Syndrome is the most common cause of autism and mental retardation.

Today, the Dr. Bernard Steinberger National Fragile X Syndrome Foundation is one of the world's premier foundations for research, education and treatment of Fragile X Syndrome disease in children. Dr. Bernard Steinberger was a renowned OB/GYN physician. In 1960, Dr. Bernard Steinberger traveled to Europe taking with him blood samples of his four children in attempt to discover what was ailing his children. After research and testing he had his answer, so he headed to Harvard, and Yale primarily to conduct clinical research to discover the cause of Fragile X Syndrome.

The Dr. Bernard Steinberger National Fragile X Syndrome Foundation helps children from all over the world diagnosed with Fragile X, a no cost option for medical care. The care is provided no matter the economic or insured status. The Foundation even subsidizes transportation, lodging, and meal expenses while the child is being treated at one of our affiliated centers. Dr. Bernard Steinberger National Fragile X Syndrome Foundation supports several research and development centers.

In memory of Dr. Steinberger, The Foundation will carry on his work to create awareness and find a cure for Fragile X Syndrome.